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Charity Spotlight: Taking Back Control with Endometriosis UK

Every March, Endometriosis Awareness Month takes place around the world to help raise awareness of the debilitating condition and the issues that affect people living with it. More than 1.5 million women in the UK alone are affected by endometriosis, which can have a devastating impact on the lives of sufferers and their families.

At Rocket Charities, we’re fortunate enough to work with Endometriosis UK, an incredible UK charity that helps women take back control by providing vital support services, reliable information and a community for those affected by endometriosis. To help shine the spotlight on the charity’s vital cause, we recently reached out to Faye Farthing, Communications and Campaigns Manager for Endometriosis UK, to learn more about endometriosis and how the charity is helping those affected by it.

Tell us a little about Endometriosis UK and it’s mission…

One in ten women may endure unrelenting pain that affects every aspect of their lives each day. That’s over 1.5 million women in the UK who desperately need support and information to help them understand this chronic condition. Endometriosis UK provides vital support services, reliable information and a community for those affected by endometriosis.

We work to increase understanding of endometriosis through campaigning, awareness-raising initiatives and research. We offer a wide range of advice and support, including a helpline, information leaflets and local support groups. These services are run by volunteers, all of whom have been affected by the condition. For more information on who we are, please visit our website at: https://www.endometriosis-uk.org/

Tell us about your role at the charity…

As the Campaigns and Communications Manager, I have the privilege of telling the stories of those affected by endometriosis in the media and in parliament. By raising awareness of endometriosis, we can make a huge difference and help provide the highest quality of support and information to those affected by the disease.

This year, we have already proved the power of our voice in lobbying the Government to change the curriculum in primary and secondary to include menstrual wellbeing – which will undoubtedly empower people to seek help when something isn’t right, and encourage an open conversation about menstrual conditions. With thanks to our fantastic volunteers, it’s by coming together to make changes like this, that will help shift the way we talk about diseases like endometriosis and normalise conversations around them.

What are some of the ways you raise awareness of Endometriosis and the issues that affect people living with it?

We raise awareness in all sorts of ways – Endometriosis Awareness Month is the perfect example of how varied our work as a small charity with a big mission is. This week alone, Endometriosis UK has raised awareness by sitting on a panel at a women’s health conference in Westminster, hosted an event in the Scottish Parliament with MSPs, and we’ve launched a new education unit with the Royal College of GPs to support GPs to identify endometriosis. We want to work with a variety of partners and organisations to ensure those with endometriosis are given the right support at the right time.

What are some of the ways that people can get involved and show their support during Endometriosis Awareness Month?

There are so many ways you can support Endometriosis UK. Our fabulous fundraisers mean the world to us. You are vital in helping us provide information and support to women with endometriosis. We receive minimal funding for the work we do and are financed almost entirely through our fundraisers, donations and annual membership subscriptions.

From hosting a bake sale to running a marathon, there are plenty of ways to raise money to help us continue our work. For Awareness Month, why not get together with your friends and family and host an ‘Endo the Night’ event? We can provide you with a pack which includes a quiz and props that are sure to make it a hilarious night in with your friends and family. For more details, visit: https://www.endometriosis-uk.org/fundraise

Is there anything else you’d like supporters to know?

This year, Endometriosis Awareness Month runs throughout March and we’re delighted to be working on a number of exciting initiatives. From launching new education material for GPs to highlight signs, symptoms, and management of endometriosis, to celebrating the introduction of menstrual wellbeing into the new Relationships and Sex Education curriculum, we’re as always working to raise awareness of the importance of education in driving down diagnosis times for endometriosis which currently averages at an alarming 7.5 years.

We’re also incredibly excited to be partnering with Standard Life and internationally-acclaimed photographer Rankin to create an exhibition launching on 21st March as part of a push to raise awareness of this debilitating illness. Keep an eye out on our website for details on how you can get involved!

To learn more about Endometriosis UK and how you can show your support this Endometriosis Awareness Month and beyond, please visit https://www.endometriosis-uk.org

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